Today we made our journey to Primary's for two appointments. Ears nose throat specialists then swallow study.
First We met with an ears nose throat specialists for concerns over Shane's quiet cry, noisy breathing and possible sleep apnea. They put a tube camera down to look at his vocal chords. They saw that he has a swollen larynx or Larynx Malaysia "floppy airway" that gets irritated by stomach acid and his feeding tube. So they gave him reflux medicine to see if that will help, this all causes the noisy breathing, gasping when sleeps snoring exe.. They also saw that one of his vocal chords is paralyzed on his left side which is causing the quiet cry and that is a chord that is wrapped around the aorta so his surgeries had big impact on that chord . they say it can come back after time hopefully by the time they are a year old. If it does not come back then he will just have quiet voice but won't affect his pronunciation of words but there is a surgery to fix it if it is needed. So all of those things were nice to know.
Second we did the swallow study to test Shane's swallow and to see if we can take his tube out. He did not aspirate on thin formula but we will need to increase the amount he eats orally slowly to what we give him total (7) ounces before we can take tube out. This is awesome news Give it a week or so and he will have it out! Oh and Shane weighed 18 lbs 4 ounces! He will be 5 months on the 19th.No wonder my arms have been tired! :) once again Shane is a strong little bugger making is way finally into "normalcy".
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