Thursday, January 12, 2012

How everything Changed

Shane was born in December as a healthy full term baby he was in the NICU for typical  jaundice until we were both released from the hospital two days later. He was home for a few days we spent Christmas together as a family and things were seeming normal. He was eating well and sleeping well. Then the day after Christmas in the afternoon he started not eating,sweating and breathing weird. As first time parents we knew something was wrong but we weren't sure. At about 2:00 in the morning  Tuesday we went to the ER to find out what was wrong. They got Shane in right away did test after test at about 30mins-hour later they decided they needed to life flight him to Primary Children's Hospital. My husband and I both sobbed and within an hour1/2 Shane could no longer breathe on his own and needed to be put on a ventilator before he could be put in helicopter.We said our goodbyes to our lifeless baby boy not knowing what was next and what the outcome would be. Every one just kept telling us he was VERY Sick! After arriving at Primary's they did their tests and found out he was in cardiac arrest. Most people dont know this but your normal heart function is around 60 when he arrived at Primary's his heart function was at a 10 very  very poor.  At this time they diagnosed him with an ASD, VSD holes in the heart, a narrowing in the aorta and Left Ventricular  non compaction a poor squeezing ventrical. He was in the ICU for a week in a half before they decided he was strong enough to do surgery. At this time they only repaired the narrowing of the Aorta and put a Pulmonary Band on his pulmonary artery to help lessen blood flow to the body. They were able to do this surgery through his side because both were areas they could fix out side of the heart. After a couple days after his surgery they did an echo to check his heart function. His heart function was still really poor and they said that 95 % of kids should have recovered by now and basically said he had a 5% chance of not needing a heart transplant. After several days and meeting with the whole heart  transplant team Shane kept doing better and better. Shane was at Primary's for a total of 16 days the first time. After his release we went back again a couple weeks later for a post operation appointment. They did another echo to check his heart function and his function came back normal. We were in awe and amazed that our little son had proved the doctors wrong. Now we just needed to get Shane bigger  and stronger for his open heart surgery!