Friday, October 18, 2013

First words / Ent appt

Hi all,
Just wanted to let you all know that Shane has said his first word bubble!!!!! He has said things that sound like words before but never repeated them again. He repeated bubble several times today!!! I about cried! He has been in speech therapy 3 wks and I don't know if that was it or things are just finally happening. We have been down a long road trying to get here and we're thrilled!!!! 
Shane also had his ENT appt yesterday and noticed his dysphagia was improving. The paralyzed vocal chord hasn't improved any so will probably remain where it is. Shane has always had congested sounding breathing and the doc said that's due too the vocal chord blocking his air way as it opens and shuts. He also said he will sound more congested when he is active and get winded tired out more easily than others. I thought that his heart would do that too. I guess he will need to stick to golf or something not so hard.. We go to his G.I again on the 30 th to figure out more his reflux problems. He is happy and healthy though so that's all that matters right now. 


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