Today
we made our journey once again to Primary’s for our check up with Shane
ENT( ears nose throat doctor) we also visited his helmet doctor don’t
know what they are called.
At
the ENT they put a scope down his nose to check vocal area / airways
and well there had been no improvement in his left paralyzed vocal chord
and his larynx was still red and swollen. The doctor is happy that he
is not getting Pneumonia or spitting up so
the swollen larynx is kind of puzzling and obviously the acid reflux
meds he is on are not working as well, although he needs to continue
taking it. The doctor wanted to see more improvement after 7 months of
healing from his open heart surgery. So in January will will see a
different surgical specialist that will decided if surgery is needed to repair his vocal chord. As
I heard it they will connect a nerve from Tongue to vocal chord ?Of
course we don’t want this and
we will ask all the questions we want if it comes to that point but
it’s hard to judge at that point a Year old what his voice/ speech
outcome will be with surgery. Not to mention the after affects. We will
cross that bridge when it comes and once again this is not life
threatening so we can handle it!
Next
we went to go get Shane’s head checked out to see his helmet shaping
progress. His head is making improvements but 4 more weeks or more is
still needed before the helmet comes off. I’m really fine with that
seeing as it does not bother him or me.
Finally after our adventures in salt lake we ventured to my ob for those who didn’t know we are expecting our 2nd
child and we found out IT’S A BOY ! Nathan just grinned and smiled .
I’m still in denial that we are having another baby but as I’m starting
to show a little, it will soon hit me. I’ am grateful though the lord decided to send another bundle our way and we hope he is healthier than Shane.
So I guess now we need to pray for Shane’s
throat and vocal chords seeing as the lord has healed his heart well
let’s have a throat /voice miracle too.I also attached some very current
pictures of shane will helmet on and off.
Love,
Emily
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