Shane had his follow up with his ENT today at Primary's. It's been about 6 weeks since his tonsil/adenoids and vocal chord injection. The doctor said it all looked like it healed well. We also discussed the improvements we have seen in Shane since the surgery. There have been lots! He hasn't been having frequent gasping episodes, he breathes normal when he sleeps, and has been sleeping better as far as quality of sleep it seems too. Shane also hasn't been coughing after everything he drinks. Shane also doesn't sound so nasally and congested all the time now. We haven't noticed any difference of volume of his voice which was a question, but we are not concerned about that at this point. So the question is now are some of these improvements because of tonsil/adenoids removal or vocal chord injection? The vocal chord injection only lasts around 5 months so if things start coming back then we know it' was improved because of the injection. If things start coming back then he said they will look into a nerve vocal chord surgery through Shane's neck that will be a permanent fix. So we will see what time will tell. Our next appt is in July.
We also met with genetics last week this was the first time in 3 years since we saw them last. Shane has a duplication of the 16th chromosome so they want to see for study purposes if any things Shane possesses are related with this duplication. Shane has some of the characteristics related with this duplication and as he developed other things may "occur" that they see with duplication. We are not to worried about any of it but I think it's fascinating and would love to get us tested too (nathan and I), but not in the cards right now.
As for us the Cox family... We were all sick over valentines, all with different sicknesses. Shane started his special Ed preschool on jan 26th with the time I wanted.
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