Giving an at home update:
Things were rough at first adjusting to
the feeding tube procedure and learning how to do it before he gets so
mad because he wants to suck on a bottle. The feeding tube goes into
his nose and down to his stomach that way. I sometimes wish I had three
hands but I'm getting the hang of it. I have also been pretty much a
single mom since Nathan has been studying hard for a test to get his
trading license which he passed today go Nathan! Shane wants to eat
through bottle bad and it's sad he can only eat 10 ml of thick formula.
The good part of the feeding tube however is I can give Shane his meds
and when your giving 11 doses of medicine a day it is nice! We have a
regular post surgery check up Wednesday and another swallow study to see
if we can get this tube out! I think I will cry if we go
home with it that day. I don't feel like it's over and we can go on
with our lives till it's out. We pray every night that Shane's swallow
will come back. I have attached some pictures of his wound and a cute
smiling picture that was taking tonight. He also came in at 15 lbs 5
ounces at his rsv shot appt last Thursday so he is a big boy! Thank you
all again for your calls, visits, prayers we know we are truly loved
and thought of.
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