Jeremy has arrived

   We are pleased to announce Our 2nd child Jeremy was born. He was born 2 week early,
at 4:19 am 6 lbs 7oz, 19 1/2 inches long! I started feeling contractions at about 7:30pm

 and went to the hospital at about 11pm and with one 1/2 push's Jeremy came out! we are all doing well so far!!!!! love to all we are very tired!:) We are excited for what raising two children will be like and Shane seems to just ignore him but when Jeremy cries he gets curious he comes up to touch his feet and hands. Its fun having a baby in the house again especially a healthy one. We did have a scare when the pediatrician said he had a "murmor" I demanded we get an echo. They did the echo and all came back great! We were relieved. Jeremy also decided to scare us and choke on his amiotic fluid often after he was born. There was a time where he stopped making noises and called nurses in as quick as we could. We learned some tricks to help and then went home a couple days later with no issues. 

Another HEART/ENT appointment.

We just had two very important appointments in the last week. On the 2nd we went to see Shane's cardiologist he got his usual echo and EKG done. I don't know why but I was really worried this appointment. I bet it was because almost a year to that day was his first heart surgery. Anyway the doctor said everything looked great and he had normal heart function. They we so amazed at how big he was  and of course how cute he is! So this was all great news!!!

Next we went to see a different ENT this ENT is a vocal surgery specialists that we were referred to because Shane's vocal paralysis was not improving. They did a normal scope to check his vocal chords and noticed still ,that stomach acid is irritating his larynx and throat. They gave us zantac  on top of his normal anti reflux meds and hope it improves. Otherwise we might have to see a GI specialists. As far as his paralyzed vocal chord goes, it healed in a position where shane's voice is loud enough that they will not have to do surgery at this time. He says that Shane's voice is still not in normal vocal range but fine. We are fine with that too!!!!  

Shane's cardiologist also recommended we get a fetal echo done at primary's so we will do that sometime soon. We are almost 28 weeks now still due April 4th and still debating the name Jeremy. We continue to feel blessed daily and hope that it is given to all of you too! 

Survival of a year Celebration! Shane turns ONE!

  We have had quite a year in the Cox household and we are definitely celebrating! Although Shane's offical birthday isn't until December 19th. We are celebrating it the saturday before. Tons of Aunts and Uncles cousins and Grandparents were able to attend. We played Pin the patch on the heart, and dice game. Ate lots of pizza and salad. Then of course Shane was able to open up his presents. What a spoiled but brave warrior to deserve this. It was a great  special time we could reminisce on the heart aches of the year, but celebrate that we still had Shane with us and that is truly something to celebrate. We had all made it a year and the angels above sang. 
 
Luke 1:37 37 For with God nothing shall be impossible

 

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Ent/ Helmet visit

Today we made our journey once again to Primary’s for our check up with Shane ENT( ears nose throat doctor) we also visited his helmet doctor don’t know what they are called.

                At the ENT they put a scope down his nose to check vocal area / airways and well there had been no improvement in his left paralyzed vocal chord and his larynx was still red and swollen. The doctor is happy that he is not getting   Pneumonia or spitting up so the swollen larynx is kind of puzzling and obviously the acid reflux meds he is on are not working as well, although he needs to continue taking it. The doctor wanted to see more improvement after 7 months of healing from his open heart surgery. So in January will will see a different   surgical specialist that will decided if surgery is needed to repair his vocal  chord.  As I heard it they will connect a nerve from Tongue to vocal chord ?Of course we don’t want this and we will ask all the questions we want if it comes to that point but it’s hard to judge at that point a Year old what his voice/ speech outcome will be with surgery. Not to mention the after affects. We will cross that bridge when it comes and once again this is not life threatening so we can handle it!

                Next we went to go get Shane’s head checked out to see his helmet shaping progress. His head is making improvements but 4 more weeks or more is still needed before the helmet comes off. I’m really fine with that seeing as it does not bother him or me.

                Finally after our adventures in salt lake we ventured to my ob for those who didn’t know we are expecting our 2^nd child and we found out IT’S A BOY ! Nathan just grinned and smiled . I’m still in denial that we are having another baby but as I’m starting to show a little, it will  soon hit me.  I’ am  grateful though the lord decided to send another bundle our way and we hope he is healthier than Shane.

            So I guess now we need to pray for  Shane’s throat and vocal chords seeing as the lord has healed his heart well let’s have a throat /voice miracle too.I also attached some very current pictures of shane will helmet on and off.

Love,

Emily

A surprise Baby!

After all we went through and are still going through I would like to announce we are pregnant. This was not planned and I'm very much in denial but I"m pregant with another precious child.

Went to the ob today I'm just barely 7 weeks so my due date is 4/4/2013 . Sad that I'm not further along for sickness but good because Shane will be a couple weeks older now. I haven't been nearly as sick with Shane though but usually sickest in morning and could take naps all day long!:) I just pray every night that I will have strength to take care of Shane. So that's the news with us.

Love,
Emily
Ps. I heard the babies heart beat today and they will do a specialist at 24 weeks.

ENT and Helmet fitting

We took our journey once again to Primary's today and met once again with our Ent (ears,nose,throat) doctor to check up on Shane's Paralyzed left vocal chord and swollen larynx. He scoped Shane which he did not like and I don't blame him. He said that his left vocal chord is still not 100 % which shocked me because Shane is a TON louder than the kitten of a sound he used to make after his open heart. So this makes me wonder how loud would he be with all of his vocal chords non paralyzed! lol Our doctor said it may never come back but will keep checking up on him. As far as his reflux he will continue to take that medicine because our doctor still see the need and they will evaluate Shane in 3 months. Our Ent also mentioned once again about Shane's "floopy airway" because shane is a noisy breather, he used the analogy of opening and closing your index finger and middle finger together and Shane's airway only opens as if only his index finger opened and shut. If that makes sense. He says that as long as his sats are always good and dosen't turn blue than he should be fine with that. 

  After the Ent we went to go get Shane's head fitted for a helmet. They put shane on a laser machine to scan his head.We should get the helmet on the 30th of July and he will need to wear it 3 + months.  Its nice that our visits to Primary's are getting farther and farther apart. It will be nice to when its once a year!

Heart doctor appointment

Just got back from seeing shane's heart doctor. He was 18lbs 9 oz and 28inches long. They did an Echo and EKG all came back with normal heart function. The doctor said that his left ventricle that wasn't pumping well was pumping as normal as the other good ventricle. Our doctor said " YOu weren't on the transplant list right? because if you are we need to take you off!" lol I said no were weren't but close to it! Shane is now off his medicines and I continue to feel my Heavenly fathers glorious hand in blessing my little ones heart. I'm so blessed and grateful for his love for our little family! I know this has not come with out the many fasts and prayers of everyone! Thank you all!